Team Tallulah

Hey all. Today was a decent day for my angel. We met this morning with "team Tallulah". All of her drs, nurses, specialist, social worker, thereapist and even chaplin. I got a bit overwhelmed when we walked into the room because it became soooooo real. I felt like a wimp, but the all re-assured me that what i was feeling was normal. We talked a lot about where my lil star is, where she is going to be and how we are going to get her there. It was an amazing meeting. I am amazed that there are people in the world that do these jobs for a living. It makes my job of styling hair so superficial! These people know sooooo much and have such gentleness in their eyes that it humbles me. I know my lil star is in good hands! She had a rough nite last nite. She had a pic line installed so that they dont have to keep pricking her to get blood. They also removed the tubes from her belly button and added an i.v. in her hand. We went to visit her while they were putting in the lines and we were shocked. We had to leave because it was overwhelming. I felt bad for our primary nurse because i could see in her face that she didnt want us to be afraid, but couldnt take the time away from what they were doing to tell us. She called us at home later that nite to re-assure us of how tiny t was doing. That was AWESOME! T is still on a low sedative and off and on with her insulin. She is so squiggly! I love touching her feet and legs. I sing to her and talk to her and I KNOW she feels and hears me. The little boy next to her is adorable. I call him T's boyfriend. I tell them that they worry us all day long laying there and then we come home and they go out dancing. LOL
We are returning to work tomorrow
I dont know how Im going to do it, but I am going to do it. I have scheduled a 2 hour break in the middle of my day from 2-4 to take a hospital break. I may have some angry clients and my even loose some, but I just HAVE to do this. I cant go the entire day without a fix. My plan is to be there in the morning before I go into the salon at 10. then take my mid day hospital break visit. Then one last good nite visit when im done at the salon around 930. Luckily we only live a few minutes from the salon and the hospital. My T.Rue is never more than a 5 min drive (thank god!). I printed up some pictures from the ones i have taken so i dont have to show them to my clients and co-workers on the laptop or my phone. I had started our first baby album with all of her ultrasound pics, and now have some live ones in there. She looks exactly EXACTLY like the ultrasound pics. Considering that the last ultrasound was exactly 1 week before she was delivered, im not surprised.
I keep telling myself that i am working for 3 now and trying to get back in that mode, but im not. I could spend 24 hours a day sitting by the incubator. I am crocheting T a blanket for her space in lavender and pink. I think she is going to love it.
My mother visited her yesterday and it was beautiful. she touches tallulah so softly. she talks to her so calm and mellow. t really responds. i took notes from her and did the same things today to t and she responded the same way. YAY! I think she is going to be very tickelish. Her little curls are starting to wave on her head and they are no longer covering her skin in aquaphor, so she is looking more and more healthy.
The doctor re-assured us today that we had enough blood already.
*****If any donors out there still want to donate, please do so. It wont go to T, but it will go to another very needing patient. You can even request that your blood stay in your local hospital and even what department it goes to.*****************

Thank you all for your continued support and concern! We are living on your hopes and prayers get us through this. I am learning a lot about myself, my husband and my family and friends. Its kind of crazy. growing up is much harder than i expected it to be, but very rewarding.

okay. i have to get back to this blanket or i will never finish it. of course i am being very ambitious with it and the pattern im using so i have to really think while im working. I did that on purpose so that i dont sit there in the nicu and listen to all of the bells and whistles going off every few seconds.

I will update you guys more tomorrow. I love you all and couldnt be where I am today without your support! Thank you from top and bottom of my heart!!!!!!!!!!!!!!!!!!!!!!!!!

Richie